Determining which SSDI applicants could or could not work under myriad medical conditions, an improving and expanding range of assistive devices, shifting labor market conditions, and changing social and legal environments is becoming increasingly difficult. This, naturally, leads to an imperfect disability determination system and several studies suggest that SSDI allows many work-capable individuals onto the system. ...more »
Ehlers Danlos Syndrome is a syndrome that encompasses several genetic disorders of varying severity with known and unknown genetic etiology. https://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome Several of the conditions manifest in childhood, some are quite serious and can result in early death and disability, yet none of them is listed as a congenital disorder under SSA. Because of the differential presentation, ...more »
1.How should SSA assess a beneficiary’s ability to direct the management of his or her benefits? First of all, SSA should assume competency unless given evidence to the contrary. If someone makes a mistake or has some deficits it would be good if SSA could refer the beneficiary to their local Independent Living Center to learn money management, if possible. We need to stop having an all or nothing mentality and allow ...more »
I was impressed with Steve Ostrega and the way Cigna revamped their processing of disability claims to serve both customers as well as the company.
In addition to telephone, online and in person applications and interviews, SSA should consider videoconferencing for those individuals with cognitive impairments who will be slow to reply to questions or whose speech may be impaired due to their disease.
Videoconferencing allows a virtual in person interaction. Ideally SSA could set up sites so those in need of assistance would be able to readily access them.
in addition to the many ways discussed that SSA can obtain medical evidence, the caregiver should be at the top of the list. SSA should routinely allow caregivers to provide statements regarding the nature of the condition affecting their loved one. Caregivers can provide more than just the "snapshot" that a medical visit provides.
The SSA periodically updates the medical criteria that are used to evaluate a given set of medical conditions. Although the SSA releases the draft revised criteria for public comment through the Federal Register, the SSA should more proactively reach out to professional societies/public health groups/experts in the field to solicit their feedback.
The National Association of Disability Representatives (NADR) strongly agrees with Lisa Ekman's statement during the Coalition meeting on September 24th that evaluation of function must be determined through an individualized assessment. The grids, which allow for consideration of pain, fatigue and mental and cognitive impairments, are appropriate and should continue to be used in determining an individual's functional ...more »
With regard to gathering medical evidence, the National Association of Disability Representatives (NADR) believes that treating sources can and do offer the most informed and accurate information about a claimant and should continue to be given priority. We also believe that eligible treating sources should be expanded to include Physicians’ Assistants, Nurse Practitioners, Physical Therapists, and social workers. Currently, ...more »
The National Association of Disability Representatives agrees that an accessible data base of shared ideas by various organizations concerning their newsletters, meetings, and so on, could be helpful in looking at
problems and opportunities from various perspectives.
For those unable to attend the Inaugural National Disability Coalition (NDC) meeting on Wednesday, September 24, 2014, in Washington, DC, please do the following to listen to the full audio recording of the event:
Dial toll free: 1-888-203-1112
Enter passcode: 6537220#
Once listening to the meeting:
Press 5 to return to the beginning
Press 7 to back up 30 seconds
Press 8 to pause
Press 9 to advance 30 seconds
A non-profit, private/public or government solution to enable disabled households some type of financial relief to help pay for their dependents school needs (school pictures, graduation dues, books, school supplies, haircuts, gas money (for vehicle to transport the dependent if family has vehicle already), hygiene needs, sports gear for high school/college, etc.) Financially stressed and disabled households are suffering ...more »