Genitourinary Disorders

Genitourinary Disorders and SSA Disability Guidelines

I have no comment regarding Question area #1.


Question #2: The patient should be considered "disabled" until the transplant surgeon personally expresses in writing the patient is ready to return to work. Sweeping generalizations, such as assuming one year of recovery is adequate are naive and downright wrong. Simultaneous heart/kidney transplantation, for example, requires a much longer recovery than simply the same amount of time a person only receiving a kidney would. To equate recovery of both patients is foolish.


Question #3: As a former two year peritoneal dialysis patient, I opted to use a home cycler. First, the feeling of liters of liquid in the abdomen is extremely uncomfortable and expecting someone to work normally under those conditions is cruel. I performed peritoneal dialysis for ten hours overnight with the cycler. I did NOT perform dialysis during the day whatsoever. As my former schedule wasn't one of the two you described in your posed question, clearly SSA evaluation needs to change. A ten hour overnight session required plugging into my machine extremely early the prior evening if I had early morning activities the next day. A 7 am wake-up for a job would require me to plug into my machine at 9 pm the evening prior, eliminating the ability for me to do anything outside of my bedroom any night of the work week. I would also eat dinner around 6-7pm and the feeling of food in the abdomen coupled with liters of liquid entering a short time later is almost unbearable. Every single PD patient undergoes a regime best fit to maintain their kidneys function. As such, a PD patient should not be pressured to work, when priority needs to be placed on adequate treatment and kidney function preservation, not whether there's some time to squeeze in a job, or expecting someone to perform sterile exchanges in a place of work.


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Idea No. 140