National Disability Coalition (Winter 2015)

GBO: Flexibly Encouraging Work and Preserving Economic Security

Determining which SSDI applicants could or could not work under myriad medical conditions, an improving and expanding range of assistive devices, shifting labor market conditions, and changing social and legal environments is becoming increasingly difficult. This, naturally, leads to an imperfect disability determination system and several studies suggest that SSDI allows many work-capable individuals onto the system. ...more »

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Vision

Vision technology updates to be considered in Lisitngs

Issues for Comment: 1.) Changes in electronic and optical technology over the past decades have led to many significant advances in ophthalmic devices and testing procedures. Laser scanning devices have become common-place. Specifically, Optical Coherence Tomography (OCT) is routinely used to measure central macular thickness (CMT,) image retinal microstructure and to analyze optic nerve cupping and retinal Nerve Fiber ...more »

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Vision

Lighting assessment

Quantitative lighting assessment following a standard protocol and used in conjunction with appropriate lighting recommendations may provide significant gains in visual performance for near tasks at low cost. For example, Fletcher et al (ARVO, 2014) showed that AMD patients gain an average of over 2 lines with increased lighting, and those with ring scotomas gain an average of 4 lines. Succar et. al. (ARVO 2015) showed ...more »

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Congenital Disorders that Affect Multiple Body Systems

Ehlers Danlos Syndrome

Ehlers Danlos Syndrome is a syndrome that encompasses several genetic disorders of varying severity with known and unknown genetic etiology. https://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome Several of the conditions manifest in childhood, some are quite serious and can result in early death and disability, yet none of them is listed as a congenital disorder under SSA. Because of the differential presentation, ...more »

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Inaugural NDC Post Meeting Comment Forum

using videoconferencing for cognitive impairment

In addition to telephone, online and in person applications and interviews, SSA should consider videoconferencing for those individuals with cognitive impairments who will be slow to reply to questions or whose speech may be impaired due to their disease.

Videoconferencing allows a virtual in person interaction. Ideally SSA could set up sites so those in need of assistance would be able to readily access them.

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Inaugural NDC Post Meeting Comment Forum

including caregiver when seeking medical evidence

in addition to the many ways discussed that SSA can obtain medical evidence, the caregiver should be at the top of the list. SSA should routinely allow caregivers to provide statements regarding the nature of the condition affecting their loved one. Caregivers can provide more than just the "snapshot" that a medical visit provides.

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Inaugural NDC Post Meeting Comment Forum

Broaden outreach when revising the medical criteria

The SSA periodically updates the medical criteria that are used to evaluate a given set of medical conditions. Although the SSA releases the draft revised criteria for public comment through the Federal Register, the SSA should more proactively reach out to professional societies/public health groups/experts in the field to solicit their feedback.

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Inaugural NDC Post Meeting Comment Forum

Factors and methods for considering ability to function

The National Association of Disability Representatives (NADR) strongly agrees with Lisa Ekman's statement during the Coalition meeting on September 24th that evaluation of function must be determined through an individualized assessment. The grids, which allow for consideration of pain, fatigue and mental and cognitive impairments, are appropriate and should continue to be used in determining an individual's functional ...more »

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Inaugural NDC Post Meeting Comment Forum

How can we enhance medical evidence?

With regard to gathering medical evidence, the National Association of Disability Representatives (NADR) believes that treating sources can and do offer the most informed and accurate information about a claimant and should continue to be given priority. We also believe that eligible treating sources should be expanded to include Physicians’ Assistants, Nurse Practitioners, Physical Therapists, and social workers. Currently, ...more »

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