As the parent of a young adult with autism who just began receiving SSI, I was eager to participate in this discussion, but I have no idea what the question is asking. "Identify individuals with medical improvement as the earliest opportunity"? I don't know what that means. I work in the disability field and asked a number of colleagues if they understood what was being asked. Only one of them even offered a suggestion ...more »
I think people/adult disabled children with autism should not have to be redetermined over and over. If it was proven as a child and then again at 18. That should be enough proof for life. Autism is in the brain, the brain does not change. No one has ever stopped being autistic. As the autistic person ages, the disability does not improve. They require more care and more assistance as they age. I think if they have ...more »
I understand that when a disabled child is awarded a large amount (6mo.+) it must go into a dedicated account. That is only to be used for medical or educational. And you must get permission from SSA before the funds are used and must submit proof of purchase. I get that. But it is not fair to still force the same rules for the dedicated account, once the child become 18 and is deemed an adult disabled child. The SSA.gov ...more »
In my work for the Vermont Disability Determination Services (DDS) and for National Council of Disability Determination Directors (NCDDD), I have heard various ideas related to the question of medical improvement and continuing disability review (CDR) processing. I will describe some of these ideas below for the purposes of this discussion. Please note that neither NCDDD nor the Vermont DDS has taken an official position ...more »
Require individuals to provide updated medical at approparite times that can be used to certify ongoing disability
Identify after the award those individuals with a possibility of improvement and require those individuals to recertify at appropriate times
Cross check individuals receving benefits with data on FICA payment to indentify those that might be working.
If completed organ transplant information is available that can then be cross checked against individuals receiving benefits, request medical updates within six months or one year post transplant if appropriate given the type of procedure..
We submit these comments as Co-Chairs of the Consortium for Citizens with Disabilities Social Security Task Force. The Consortium for Citizens with Disabilities (CCD) is a coalition of national organizations working together to advocate for national public policy that ensures the self-determination, independence, empowerment, integration, and inclusion of the 57 million children and adults with disabilities in all aspects ...more »
What other topics are you interested in discussing in future forums?
Assuming limited funding, what services are considered the most beneficial for youth? Should SSA directly provide these services (e.g., WIPAs and ENs), or should they be provided by traditional service-providers and agencies (e.g., VR, DOL, ED, HHS, state & local, etc.)?
What policies should SSA consider discontinuing? (e.g., eliminating countable earnings for children)